Kidney disease and patients organisations
NHS Renal National Service
Framework
http://www.doh.gov.uk/nsf/renal.htm
National Kidney Federation
UK charity run by Kidney patients for
kidney
patients
http://www.kidney.org.uk/
The Kidney Alliance
Aims to bring together patients' voice and
professionals committed to renal
medicine
http://www.kidneyalliance.org.uk/
Diabetes UK
Charity working for people with
diabetes
http://www.diabetes.org.uk/
Transplant policy and resources
UK Transplant
Special NHS Health Authority
providing support to transplantation services across the
UK
http://www.uktransplant.org.uk/
Unrelated Live Transplant Regulatory Authority (ULTRA)
Information
on living donation
http://www.doh.gov.uk/ultra.htm
British Medical Association
(BMA)
http://www.bma.org.uk/
BMA Report 'Organ Donation in the 21st
Century'
http://web.bma.org.uk/ap.nsf/Content/organ+donation+in+the+21st+century
British Transplant
Society
http://www.bts.org.uk/
Transplantsquare
Novartis sponsored site with information for
clinicians and
patients
http://www.transplantsquare.com/patients/
Xenotransplantation
United Kingdom Xenotransplantation Interim
Regulatory Authority
(UKXIRA)
http://www.doh.gov.uk/ukxira/
PubliForum
Citizens Panel report of Swiss consultation on
xenotransplantion and transplant
medicine
http://www.publiforum2000.ch/framesetnav_e.htm
Canadian Public Consultation on Xenotransplanation
National
consultation organised by the Canadian Public Health Association on behalf of
the Canadian
government
http://www.xeno.cpha.ca/english/index_e.htm
Compassion in World Farming
Animal welfare organisation which
campaigns against genetic engineering of farm animals, including
xenotransplantation.
http://www.ciwf.co.uk/
'Animal Organs in Humans: Uncalculated Risks and Unanswered
Questions'
CIWF / BUAV
Report
http://www.ciwf.co.uk/Pubs/CIWF_reports.htm#Xeno1
PPL Therapeutics
leading British company involved in the
application of transgenic technology to xenotransplantation. Also actively
involved in research into regenerative
medicine.
http://www.ppl-therapeutics.com/products/products_5.html
Stem cell research
UK House of Lords Stem Cells Research
Committee
http://www.publications.parliament.uk/pa/ld200102/ldselect/ldstem/83/8301.htm
UK Human Fertilisation and Embryology Authority
(HFEA)
http://www.hfea.gov.uk/
Deliberative Inclusive Processes (DIPS) and Participatory Technology
Assessment
Deliberative and Inclusionary Processes in
Environmental Policy Making
1989 - 2000 ESRC/Foresight funded seminar
series
http://www.geog.ucl.ac.uk/esru/dip/
1994 UK National Consensus Conference on Plant
Biotechnology
http://134.225.167.114/NCBE/GMFOOD/ccreport.html
Participatory Methods in Technology Assessment and
Technology
Decision-Making
http://www.tekno.dk/subpage.php3?article=345&survey=14&language=uk&front=1
Prajateerpu
A Citizens Jury / Scenario Workshop on Food and Farming
Futures for Andhra Pradesh,
India
http://www.iied.org/pdf/Prajateerpu.pdf
Other useful sites
The Wellcome
Trust
http://www.wellcome.ac.uk/
GeneWatch UK
An independent organisation concerned with the ethics
and risks of genetic
engineering
http://www.genewatch.org/
The Nuffield Council on
Bioethics
http://www.nuffieldbioethics.org/
UK Parliamentary Office of Science and
Technology
http://www.parliament.uk/post/home.htm